
In the early weeks of development,
long before a child is born, the right and left sides of
the lip and the roof of the mouth normally grow
together. Occasionally, however, in about one of every
800 babies, those sections don't quite meet. A child
born with a separation in the upper lip is said to have
a cleft lip. A similar birth defect in the roof of the
mouth, or palate, is called a cleft palate. Since the
lip and the palate develop separately, it is possible
for a child to have a cleft lip, a cleft palate, or
variations of both.
If your child was born with either
or both of these conditions, your doctor will probably
recommend surgery to repair it. Medical professionals
have made great advances in treating children with
clefts and can do a lot to help your child lead a
normal, healthy, happy life.
This information will give you a
basic understanding of the operation -- when it can
help, how it's performed, and what results you can
expect. It can't answer all of your questions, since a
lot depends on you individual circumstances. Please be
sure to ask Dr. Rieger if there is anything you don't
understand about the procedure.
THE IMPORTANCE OF A TEAM APPROACH
Children born with a cleft lip or
palate may need the skills of several medical
professionals to correct the problems associated with
the cleft. In addition to needing plastic surgery to
repair the opening, these children may have problems
with their feeding and their teeth, their hearing, their
speech, and their psychological development as they grow
up.
For that reason, parents should
seek the help of a Cleft Lip and Palate Team as early as
possible. Medical professionals with special experience
in the problems of cleft lip and palate have formed such
teams all over the country to help parents plan for
their child's care from birth, or even before.
Typically, a Cleft Team might include a plastic surgeon,
a pediatrician, a dentist, a speech and language
specialist, a social worker, a hearing specialist, an
ear-nose-throat specialist, a psychologist, a nurse, and
a genetic counselor.
ALL SURGERY CARRIES SOME
UNCERTAINTY AND RISK
When surgery is done by a qualified
plastic surgeon with experience in repairing cleft lip
or palate, the results can be quite positive.
Nevertheless, as with any operation, there are risks
associated with surgery and specific complications
associated with this procedure.
In cleft lip surgery, the most
common problem is asymmetry, when one side of the mouth
and nose does not match the other side. The goal of
cleft lip surgery is to close the separation in the
first operation. Occasionally, a second operation may be
needed.
In cleft palate surgery, the goal
is to close the opening in the roof of the mouth so the
child can eat and learn to speak properly. Occasionally,
poor healing in the palate or poor speech may require a
second operation.
PLANNING FOR SURGERY
At your initial consultation, your
doctor will discuss the details of the procedure he or
she will use, including where the surgery will be
performed, the type of anesthesia to be used, possible
risks and complications, recovery, costs, and the
results you can expect. Your surgeon will also answer
any questions you may have about feeding your baby, by
breast or by bottle, both before and after the surgery.
In most cases, health insurance
policies will cover most or all of the cost of cleft lip
or cleft palate surgery. Check your policy to make sure
your child is covered and to see if there are any
limitations on what types of treatment are covered.
CLEFT LIP SURGERY
A cleft lip can range in severity from a slight notch in the red part of the upper lip to a complete separation of the lip extending into the nose. Clefts can occur on one or both sides of the upper lip. Surgery is generally done when the child is about 3 months old.

A cleft lip is a separation of
the upper lip that can extend into the nose.
To repair a cleft lip, the surgeon will make an incision on either side of the cleft from the mouth into the nostril. He or she will then turn the dark pink outer portion of the cleft down and pull the muscle and the skin of the lip together to close the separation. Muscle function and the normal "cupid's bow" shape of the mouth are restored. The nostril deformity often associated with cleft lip may also be improved at the time of lip repair or in a later surgery.

To repair a cleft lip, the surgeon will first make an incision on each side of the cleft from the lip to the nostril.

The cleft lip is then drawn together and stitched to create a normal "cupid's bow" shape to the upper lip.

The scar left after surgery will
gradually fade with time.
RECOVERING FROM CLEFT LIP SURGERY
Your child may be restless for
awhile after surgery, but your doctor can prescribe
medication to relieve any discomfort. Elbow restraints
may be necessary for a few weeks to prevent your baby
from rubbing the stitched area.
If dressings have been used,
they'll be removed within a day or two, and the stitches
will either dissolve or be removed within five days.
Your doctor will advise you on how to feed your child
during the first few weeks after surgery.
It's normal for the surgical scar
to appear to get bigger and redder for a few weeks after
surgery. This will gradually fade, although the scar
will never totally disappear. In many children, however,
it's barely noticeable because of the shadows formed by
the nose and upper lip.
CLEFT PALATE SURGERY
In some children, a cleft palate may involve only a tiny portion at the back of the roof of the mouth; for others, it can mean a complete separation that extends from front to back. Just as in cleft lip, cleft palate may appear on one or both sides of the upper mouth. However, repairing a cleft palate involves more extensive surgery and is usually done when the child is nine to 18 months old, so the baby is bigger and better able to tolerate surgery.

When the roof of the mouth
doesn't grow together properly, the condition is called
a cleft palate. To repair it, the surgeon will make an
incision along both sides of the cleft.
To repair a cleft palate, the surgeon will make an incision on both sides of the separation, moving tissue from each side of the cleft to the center or midline of the roof of the mouth. This rebuilds the palate, joining muscle together and providing enough length in the palate so the child can eat and learn to speak properly.

Tissue is drawn together from
both sides of the cleft to rebuild the roof of the
mouth.
RECOVERING FROM CLEFT PALATE
SURGERY
For a day or two, your child will
probably feel some soreness and pain, which is easily
controlled by medication. During this period, you child
will not eat or drink as much as usual -- so an
intravenous line will be used to maintain fluid levels.
Elbow restraints may be used to prevent your baby from
rubbing the repaired area. Your doctor will advise you
on how to feed your child during the first few weeks
after surgery.
THE REPAIRED LIP OR PALATE
Children with a cleft palate are
particularly prone to ear infections because the cleft
can interfere with the function of the middle ear. To
permit proper drainage and air circulation, the
ear-nose-and-throat surgeon on the Cleft Palate Team may
recommend that a small plastic ventilation tube be
inserted in the eardrum. This relatively minor operation
may be done later or at the time of the cleft repair. In
addition, surgery may be recommended by your plastic
surgeon when your child is older to refine the shape and
function of the lip, nose, gums, and palate.
You'll want to discuss further
needs with the members of the Cleft Team seeing your
child.
Perhaps most important, keep in
mind that surgery to repair a cleft lip or palate is
only the beginning of the process. Family support is
critical for your child. Love and understanding will
help him or her grow up with a sense of self-esteem that
extends beyond the physical defect.
call 316-652-9333 for a consult
about Cleft Craft Surgery in Wichita, Kansas.
Brochure © 2003 American Society of
Plastic Surgery